Couple not allowed to take dying baby home, nor seek experimental treatment

The British parents of a terminally ill baby have been left heartbroken by doctor's decision to not let him go home to die.

Ten-month-old Charlie Gard's life support machine will be turned off Friday (NZ time) after the European Court of Human Rights said it was in his best interest to let him die.

Chris Gard and Connie Yates have battled in court to take their son, who has a rare genetic condition, to the US for experimental treatment.

The couple started a GoFundMe page that raised £1.3million to pay for nucleoside therapy treatment.

Charlie Gard needs a ventilator to survive.
Charlie Gard needs a ventilator to survive. Photo credit: GoFundMe

Charlie is one of only 16 recorded cases of mitochondrial depletion syndrome, which depletes him of energy, leaving his organs so weak he needs a ventilator to breath.

Doctors said there was nothing more they could do for Charlie, who has irreversible brain damage and cannot see, hear or move.

The couple believe Charlie's condition is not that bad, saying he opens his eyes when they are around.

In a heartbreaking video from the flat near the hospital they've lived in since their son was admitted, they sobbed as they spoke about the decision.

Parents Chris and Connie are devastated they can't bring baby boy Charlie home.
Parents Chris and Connie are devastated they can't bring baby boy Charlie home. Photo credit: YouTube

"We chose to take Charlie home to die. That is our last wish. We promised out little boy every single day that we would take him home," said Ms Yates.

The couple, who have previously lost battles in the High Court, Court of Appeal and Supreme Court, said a request to spend a final week with Charlie was denied by doctors.

"Not only are we not allowed to take our son to an expert hospital to save his life, we also can't choose how or when our son dies," said Ms Yates.

Newshub.