Tonight on The Hui, the new Māori Health Authority represents fresh hope for the whānau of those living with serious illnesses, but for some it will come too late.
The Hui delves into one whānau's attempt to access the Trikafta their 13-year-old son desperately needs.
They say Pharmac has a responsibility to fund it - and they're taking their fight to Parliament.
Watch Monday's episode below.
Made with support from Te Māngai Pāho and NZ On Air.